International XLH Alliance

International XLH Alliance

Non-profit-Organizations

London, Kent
Company Tagline

We are an international alliance of patient groups for those affected by X-Linked Hypophosphatemia and related disorders

Industry Category
Non-profit-Organizations
Company Description

International XLH Alliance is a leading non-profit organization dedicated to amplifying the patient voice of X-linked hypophosphatemia (XLH) and related disorders. By connecting patient groups worldwide, International XLH Alliance is setting a global, multidisciplinary standard of care and research to ensure that all patients receive the best possible management. The alliance focuses on collaborative efforts that transcend individual limitations, creating a unified front for advocacy and support.

Operating with a vision of comprehensive care, International XLH Alliance works towards ensuring consistent and effective management for all patients affected by XLH. The organization’s efforts are geared towards fostering a supportive community, driving innovative research, and promoting best practices in patient care. With headquarters in London, Kent DA9 9AA, GB, and an additional presence in New York City, New York 12206, US, International XLH Alliance maintains a global footprint, reaching individuals and groups across various regions.

International XLH Alliance is committed to making a significant impact in the lives of those affected by XLH and related disorders. The organization continues to expand its reach and deepen its engagement with patient groups, healthcare professionals, and researchers worldwide. We invite the manager of International XLH Alliance to create a customized and exclusive company showcase and product listing on our platform to further enhance your global presence and connect with a broader audience.

Key Personnel / Employees
Oliver Gardiner Tenna Toft Sylvest

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Alternative Company Names

This company is also known as

International XLH Alliance 国际 XLH 联盟 अंतर्राष्ट्रीय XLH एलायंस Alianza Internacional XLH التحالف الدولي XLH Alliance Internationale XLH Международный альянс XLH Aliança Internacional XLH