The Smith-Magenis Syndrome (SMS) Foundation UK
Non-profit-Organizations
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Company Tagline
Connecting Families - Raising Awareness - Building Futures
Industry Category
Business Keywords
Company Description
The Smith-Magenis Syndrome (SMS) Foundation UK is dedicated to connecting families, raising awareness, and building futures for those affected by Smith-Magenis Syndrome, a rare genetic disorder. As a registered charity, The Smith-Magenis Syndrome (SMS) Foundation UK provides essential support through biennial conferences, locally organized social events, and vibrant social media communities. This strengthens peer-to-peer connections and fosters a supportive network for families navigating the challenges of SMS.
The Smith-Magenis Syndrome (SMS) Foundation UK is committed to advancing the understanding and management of SMS through research, training, and the development of guidelines in collaboration with a professional advisory board. By liaising with international partners and rare syndrome organizations, The Smith-Magenis Syndrome (SMS) Foundation UK ensures access to specialist advice and resources, empowering individuals with SMS to achieve their full potential at every stage of life. The Smith-Magenis Syndrome (SMS) Foundation UK operates primarily from 12 Bankton Brae, Murieston, LIVINGSTON, West Lothian EH54 9LA, GB.
Through publications, case studies, social media campaigns, and the annual 17th November awareness day, The Smith-Magenis Syndrome (SMS) Foundation UK actively promotes awareness of SMS and other rare genetic disorders. Additionally, a small grants scheme is available to enhance the life experiences of individuals with SMS. The Smith-Magenis Syndrome (SMS) Foundation UK is located at 18 Suthmere Drive, Burbage, Marlborough, Wiltshire SN8 3TG, GB. We invite the manager of The Smith-Magenis Syndrome (SMS) Foundation UK to create a customized and exclusive company showcase and product listing on our platform to further amplify your mission and reach.
The Smith-Magenis Syndrome (SMS) Foundation UK se dedica a conectar familias, crear conciencia y construir futuros para aquellos afectados por el síndrome de Smith-Magenis, un trastorno genético raro. Como organización benéfica registrada, The Smith-Magenis Syndrome (SMS) Foundation UK brinda apoyo esencial a través de conferencias bienales, eventos sociales organizados localmente y comunidades vibrantes en las redes sociales. Esto fortalece las conexiones entre pares y fomenta una red de apoyo para las familias que enfrentan los desafíos del SMS.
The Smith-Magenis Syndrome (SMS) Foundation UK se compromete a promover la comprensión y el manejo del SMS a través de la investigación, la capacitación y el desarrollo de pautas en colaboración con una junta asesora profesional. Al mantener contacto con socios internacionales y organizaciones de síndromes raros, The Smith-Magenis Syndrome (SMS) Foundation UK garantiza el acceso a asesoramiento y recursos especializados, lo que permite a las personas con SMS alcanzar su máximo potencial en cada etapa de la vida. The Smith-Magenis Syndrome (SMS) Foundation UK opera principalmente desde 12 Bankton Brae, Murieston, LIVINGSTON, West Lothian EH54 9LA, GB.
A través de publicaciones, estudios de casos, campañas en redes sociales y el día anual de concientización del 17 de noviembre, The Smith-Magenis Syndrome (SMS) Foundation UK promueve activamente la conciencia sobre el SMS y otros trastornos genéticos raros. Además, hay disponible un pequeño programa de subvenciones para mejorar las experiencias de vida de las personas con SMS. The Smith-Magenis Syndrome (SMS) Foundation UK se encuentra en 18 Suthmere Drive, Burbage, Marlborough, Wiltshire SN8 3TG, GB. Invitamos al gerente de The Smith-Magenis Syndrome (SMS) Foundation UK a crear una presentación de empresa y un listado de productos personalizados y exclusivos en nuestra plataforma para amplificar aún más su misión y alcance.
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Compare The Smith-Magenis Syndrome (SMS) Foundation UK with 1 companies in Non-profit-Organizations
| Comparison Field |
The Smith-Magenis Syndrom...Main Company |
Netherlands Institut...View Profile |
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Founded Year
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— | 2005 |
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Company Size
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— | 201-500 |
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City
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LIVINGSTON, West Lothian | |
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Country
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Scotland | |
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Skills & Keywords
Comparing with main company
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12 Total Skills
Smith-Magenis Syndrome
Genetic Disorders
Rare Diseases
Non-profit Organizations
Charity Support
Family Support
Medical Research
Behaviour
Genetic Disorder
Charity
Rare Disease
Sleep
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17 Total
17 Unique
Unique Skills:
Alzheimer
Axons
Brain
Brain Bank
Cognition
Depression
+11
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2
Total Companies2005
Oldest Founded1
Countries29
Unique SkillsSimilar Companies
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