National Organization for Rare Disorders
Non-profit-Organizations
Website
Company Tagline
Alone we are rare. Together we are strong.®
Industry Category
Business Keywords
Company Description
The National Organization for Rare Disorders is a leading non-profit organization dedicated to advocating for individuals affected by rare diseases and supporting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders, The National Organization for Rare Disorders focuses on education, advocacy, research, and comprehensive patient support services. With a strong network of patient organization members, The National Organization for Rare Disorders serves as a crucial resource for patients, families, researchers, medical professionals, and companies developing orphan products.
The National Organization for Rare Disorders actively collaborates with government agencies, including the National Institutes of Health (NIH) and the Food and Drug Administration (FDA), to enhance its programs and broaden its impact. The primary goal of The National Organization for Rare Disorders is to improve the quality of life for individuals and families affected by rare diseases. The National Organization for Rare Disorders’s primary address is 55 Kenosia Avenue, Danbury, CT 06810, US. The organization also has offices at 1779 Massachusetts Avenue, Suite 500, Washington, DC 20036, US, and 1900 Crown Colony Drive, 4th floor, Quincy, MA 02169, US.
As the official sponsor of Rare Disease Day in the US, The National Organization for Rare Disorders is committed to raising awareness and improving access to treatment and medical representation for those affected by rare diseases. We invite the manager of The National Organization for Rare Disorders to create a customized and exclusive company showcase and product listing on our platform, enhancing its reach and impact.
L'Organisation Nationale pour les Troubles Rares est une organisation à but non lucratif de premier plan qui se consacre à la défense des personnes atteintes de maladies rares et au soutien des organisations qui les servent. Engagée dans l'identification, le traitement et la guérison des maladies rares, l'Organisation Nationale pour les Troubles Rares se concentre sur l'éducation, la défense des droits, la recherche et des services complets de soutien aux patients. Grâce à un solide réseau d'organisations de patients membres, l'Organisation Nationale pour les Troubles Rares est une ressource essentielle pour les patients, les familles, les chercheurs, les professionnels de la santé et les entreprises qui développent des produits orphelins.
L'Organisation Nationale pour les Troubles Rares collabore activement avec des agences gouvernementales, notamment les National Institutes of Health (NIH) et la Food and Drug Administration (FDA), afin d'améliorer ses programmes et d'élargir son impact. L'objectif principal de l'Organisation Nationale pour les Troubles Rares est d'améliorer la qualité de vie des personnes et des familles touchées par les maladies rares. L'adresse principale de l'Organisation Nationale pour les Troubles Rares est 55 Kenosia Avenue, Danbury, CT 06810, États-Unis. L'organisation possède également des bureaux au 1779 Massachusetts Avenue, Suite 500, Washington, DC 20036, États-Unis, et au 1900 Crown Colony Drive, 4th floor, Quincy, MA 02169, États-Unis.
En tant que sponsor officiel de la Journée des maladies rares aux États-Unis, l'Organisation Nationale pour les Troubles Rares s'engage à sensibiliser le public et à améliorer l'accès au traitement et à la représentation médicale des personnes atteintes de maladies rares. Nous invitons le responsable de l'Organisation Nationale pour les Troubles Rares à créer une vitrine d'entreprise et une liste de produits personnalisées et exclusives sur notre plateforme, afin d'accroître sa portée et son impact.
Key Personnel / Employees
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|---|---|---|---|---|
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Founded Year
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— | 2009 | 2003 | 1997 |
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Company Size
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— | 2-10 | 2-10 | 11-50 |
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City
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Danbury, CT | Blairgowrie, VIC | Wellington, FL | |
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Country
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United States | Australia | United States | |
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Skills & Keywords
Comparing with main company
|
16 Total Skills
Rare diseases
Patient advocacy
Non-profit
Medical research
Healthcare
Orphan drugs
Patient support
orphan diseases
advocacy
information for medical professionals
patient assistance
rare diseases
research
patient support
rare disease information
online communities
|
12 Total
12 Unique
Unique Skills:
cancer patient care
cancer research
cancer support
charity
funding NET nurse
fundraising
+6
|
11 Total
11 Unique
Unique Skills:
biotech
biotechnology
education
ethics
investment
legal
+5
|
8 Total
8 Unique
Unique Skills:
diplomacy
education
foreign policy
international politics
international relations
open society
+2
|
4
Total Companies1997
Oldest Founded2
Countries46
Unique SkillsSimilar Companies
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Alternative Company Names
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