Myotonic Dystrophy Foundation
Non-profit-Organizations
Website
Company Tagline
The world's largest patient organization focused solely on myotonic dystrophy. Our mission is Community, Care, & a Cure.
Industry Category
Business Keywords
Company Description
The Myotonic Dystrophy Foundation is a leading non-profit organization dedicated to enhancing the lives of individuals affected by myotonic dystrophy. Based in Oakland, California, at 663 13th St, Suite 100, the Myotonic Dystrophy Foundation focuses on community support, care initiatives, and the pursuit of a cure for this inherited disorder. The Foundation is committed to being the premier resource for patients, families, social workers, and physicians navigating the complexities of myotonic dystrophy.
With a strong emphasis on research and education, the Myotonic Dystrophy Foundation partners with esteemed institutions such as the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to drive advancements in understanding and treating myotonic dystrophy. The Foundation’s work spans across medical education, patient advocacy, and the provision of essential support groups, ensuring comprehensive assistance to those affected by the condition. By fostering collaboration and providing critical resources, the Myotonic Dystrophy Foundation plays a vital role in the global effort to combat myotonic dystrophy.
As the world's largest patient organization solely focused on myotonic dystrophy, the Myotonic Dystrophy Foundation continues to expand its reach and impact, creating a supportive community for tens of thousands of individuals. The Myotonic Dystrophy Foundation remains dedicated to its mission of improving the quality of life for people living with myotonic dystrophy and advancing research towards effective treatments and a cure. We invite the Myotonic Dystrophy Foundation's management team to create a customized and exclusive company showcase and product listing on our platform to further amplify your organization’s important work.
La Myotonic Dystrophy Foundation est une organisation à but non lucratif de premier plan dédiée à l'amélioration de la vie des personnes atteintes de dystrophie myotonique. Basée à Oakland, en Californie, au 663 13th St, Suite 100, la Myotonic Dystrophy Foundation se concentre sur le soutien communautaire, les initiatives de soins et la recherche d'un traitement pour cette maladie héréditaire. La Fondation s'engage à être la principale ressource pour les patients, les familles, les travailleurs sociaux et les médecins confrontés aux complexités de la dystrophie myotonique.
En mettant fortement l'accent sur la recherche et l'éducation, la Myotonic Dystrophy Foundation s'associe à des institutions estimées telles que les National Institutes of Health (NIH) et les Centers for Disease Control and Prevention (CDC) pour faire progresser la compréhension et le traitement de la dystrophie myotonique. Le travail de la Fondation couvre l'éducation médicale, la défense des patients et la fourniture de groupes de soutien essentiels, garantissant une assistance complète aux personnes touchées par cette condition. En favorisant la collaboration et en fournissant des ressources essentielles, la Myotonic Dystrophy Foundation joue un rôle essentiel dans l'effort mondial de lutte contre la dystrophie myotonique.
En tant que plus grande organisation de patients au monde axée uniquement sur la dystrophie myotonique, la Myotonic Dystrophy Foundation continue d'étendre sa portée et son impact, créant une communauté de soutien pour des dizaines de milliers de personnes. La Myotonic Dystrophy Foundation reste dévouée à sa mission d'améliorer la qualité de vie des personnes vivant avec la dystrophie myotonique et de faire progresser la recherche vers des traitements efficaces et un remède. Nous invitons l'équipe de direction de la Myotonic Dystrophy Foundation à créer une vitrine d'entreprise personnalisée et exclusive ainsi qu'une liste de produits sur notre plateforme afin d'amplifier davantage le travail important de votre organisation.
Key Personnel / Employees
Compare Companies Side by Side
Compare Myotonic Dystrophy Foundation with 3 companies in Non-profit-Organizations
| Comparison Field |
Myotonic Dystrophy Founda...Main Company |
Colorectal Cancer Al...View Profile |
PharmixVisionView Profile |
AT Medics part of th...View Profile |
|---|---|---|---|---|
|
Founded Year
|
— | 1999 | 2024 | 2004 |
|
Company Size
|
— | 51-200 | 2-10 | 501-1,000 |
|
City
|
Oakland, California | Washington, DC | ||
|
Country
|
United States | United States | ||
|
Skills & Keywords
Comparing with main company
|
12 Total Skills
Myotonic Dystrophy
Non-profit
Patient Advocacy
Medical Research
Community Support
Disease Research
Healthcare
Research Grants
Grants
Medical Education
Education
Support Groups
|
10 Total
10 Unique
Unique Skills:
Advocacy
Cancer Research
Cancer Support
Colon Cancer
colorectal cancer
Family Support
+4
|
9 Total
9 Unique
Unique Skills:
Continuing Education
E-learning
Empowering
Knowledge
Lerner
MedEd
+3
|
6 Total
1 Common
5 Unique
Match
8%
Common Skills:
Healthcare
Unique Skills:
General Practice
Health Tech
Medical Care
Primary Care
Technology
|
4
Total Companies1999
Oldest Founded1
Countries36
Unique SkillsSimilar Companies
Other organizations in the same industry
The R Foundation for Statistical Computing
Non-profit-OrganizationsThe R Foundation for Statistical Computing is a not-for-profit organization to support the R Project...
Autistic Girls Network
Non-profit-OrganizationsSupporting and campaigning for Autistic girls and families, for better awareness and acceptance, and...
Alternative Company Names
This company is also known as