EURORDIS-Rare Diseases Europe

EURORDIS-Rare Diseases Europe

Non-profit-Organizations

Paris, Paris
France
Company Tagline

Working across borders and diseases to improve the lives of all people living with rare diseases.

Industry Category
Non-profit-Organizations
Company Description

EURORDIS-Rare Diseases Europe is a leading non-profit organization dedicated to improving the lives of individuals living with rare diseases. With a strong network of over 1,000 patient organizations across more than 70 countries, EURORDIS works tirelessly to advocate for patients' rights, promote research, and shape policies that positively impact the rare disease community. EURORDIS envisions a world where every person living with a rare disease can achieve their full potential, supported by timely diagnoses, state-of-the-art care, and full inclusion in society.

Operating from its primary address at 96 Rue Didot, Paris, Paris 75014, FR, EURORDIS-Rare Diseases Europe serves as a central hub for collaboration and innovation. The organization is committed to connecting and mobilizing stakeholders from all sectors to ensure that the voices of those affected by rare diseases are heard and valued. EURORDIS's mission is to work across borders and diseases, ensuring that individuals living with rare conditions receive the recognition, support, and resources they need to thrive.

EURORDIS continues to be at the forefront of driving positive change in the rare disease landscape. We invite the manager of EURORDIS-Rare Diseases Europe to create a customized and exclusive company showcase and product listing on our platform, further amplifying your organization's impact and reach.

EURORDIS-Rare Diseases Europe est une organisation à but non lucratif de premier plan dédiée à l'amélioration de la vie des personnes atteintes de maladies rares. Fort d'un solide réseau de plus de 1 000 organisations de patients dans plus de 70 pays, EURORDIS travaille sans relâche pour défendre les droits des patients, promouvoir la recherche et façonner des politiques qui ont un impact positif sur la communauté des maladies rares. EURORDIS envisage un monde où chaque personne atteinte d'une maladie rare peut réaliser son plein potentiel, grâce à des diagnostics rapides, des soins de pointe et une inclusion totale dans la société.

Opérant depuis son adresse principale au 96 Rue Didot, Paris, Paris 75014, FR, EURORDIS-Rare Diseases Europe sert de plaque tournante pour la collaboration et l'innovation. L'organisation s'engage à connecter et à mobiliser les parties prenantes de tous les secteurs afin de s'assurer que les voix des personnes touchées par des maladies rares soient entendues et valorisées. La mission d'EURORDIS est de travailler au-delà des frontières et des maladies, en veillant à ce que les personnes atteintes de maladies rares reçoivent la reconnaissance, le soutien et les ressources dont elles ont besoin pour s'épanouir.

EURORDIS continue d'être à l'avant-garde de la conduite de changements positifs dans le paysage des maladies rares. Nous invitons le responsable d'EURORDIS-Rare Diseases Europe à créer une vitrine d'entreprise et une liste de produits personnalisées et exclusives sur notre plateforme, afin d'amplifier davantage l'impact et la portée de votre organisation.

Key Personnel / Employees
Dorota Zgodka Ph.D. Roseline Favresse Michael Wilbur Valentina Bottarelli Arabela Acalinei (Președinte EAMDA și Asociatia Neuro Move CMT) Pooya Ferdosipour (Electrical and Electronics engineer)

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Compare EURORDIS-Rare Diseases Europe with 3 companies in Non-profit-Organizations

4 Companies
Comparison Field
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Founded Year
2011 1986
Company Size
11-50 2-10 11-50
City
Paris, Paris Johannesburg, Gauteng Long Beach, California Silver Spring, MD
Country
France South Africa United States United States
Skills & Keywords Comparing with main company
12 Total Skills
Rare Diseases Non-profit Organization Patient Advocacy Orphan Drug Policy Healthcare Medical Research Patient Empowerment orphan drug policy policy development advocacy European networking of patients patient empowerment
20 Total 20 Unique
Unique Skills:
capacity-building Civil Society civil society mobilisation Community engagement Constitution Discrimination +14
18 Total 18 Unique
Unique Skills:
active transportation adaptive reuse affordable housing arts & culture building design climate resiliency +12
2 Total 2 Unique
Unique Skills:
patient education public policy
4
Total Companies
1986
Oldest Founded
3
Countries
52
Unique Skills

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Alternative Company Names

This company is also known as

EURORDIS-Rare Diseases Europe 欧洲罕见病组织 EURORDIS-दुर्लभ रोग यूरोप EURORDIS-Enfermedades Raras Europa EURORDIS-الأمراض النادرة أوروبا EURORDIS-Maladies Rares Europe EURORDIS-Редкие заболевания Европа EURORDIS-Doenças Raras Europa