Saba Foundation for Rare Diseases

Saba Foundation for Rare Diseases (SFRD) is dedicated to serving the health and human services sector as a vital resource for patients living with rare diseases in India. Located in Hyderabad, Telangana, SFRD operates as a not-for-profit organization, striving to create a unified platform for all stakeholders in the rare disease ecosystem. The foundation aims to amplify the voices of patients and provide comprehensive support through various initiatives. Saba Foundation for Rare Diseases is committed to improving the lives of individuals affected by rare conditions. With a focus on patient-centric care, the foundation engages with disease-specific patient organizations, specialist doctors, diagnostic entities, and other crucial members of the healthcare community. By fostering collaboration and providing essential resources, Saba Foundation for Rare Diseases empowers patients and their families to navigate the challenges associated with rare diseases.

Saba Foundation for Rare Diseases focuses on several key areas, including patient identification, education, empowerment, and advocacy. The organization works to ensure that rare disease patients have access to affordable diagnostics, specialist medical care, and comprehensive support services. Furthermore, Saba Foundation for Rare Diseases actively advocates for a national policy on rare diseases and orphan drugs, aiming to create a more supportive and inclusive healthcare environment for those affected. Through its dedication and comprehensive approach, SFRD strives to be a common and resilient voice for rare disease patients across India.

The primary address of Saba Foundation for Rare Diseases is H.No.1-8-143, 2nd Floor, Flat No. 201, Penderghast Road, Secunderabad, Hyderabad, Telangana 500003, IN. Saba Foundation for Rare Diseases continues to expand its reach and enhance its services to better serve the rare disease community. We invite the manager of Saba Foundation for Rare Diseases to create a customized and exclusive company showcase and product listing on our platform, to further amplify their important work.